Join me as I share My Becker Muscular Dystrophy Story!

Hi, I’m Brad Miller, a Canadian author, blogger, and advocate living with Becker Muscular Dystrophy (BMD). Diagnosed at age 10, I launched My Becker’s Story in 2010 to share my journey and raise awareness about BMD. So please join me on my journey through my childhood into my mid-forties living with Becker Muscular as I hold nothing back by sharing every victory and defeat while providing a few tips along the way!

My New Book “Fighting Towards Victory”
In 2023, I published Fighting Towards Victory: Living a Life Where Perseverance Is Key, where I share my experiences growing up with a rare disease. By sharing personal stories and real-life experiences, I strive to show others they’re not alone in their journey. This book goes beyond my blog, offering insight, storytelling, practical advice, and motivation for anyone facing the challenges life brings.

This book is especially valuable for:
▪︎ People with Becker Muscular Dystrophy
▪︎ Parents of children with MD
▪︎ Anyone living with a chronic illness

What Readers Are Saying

• “What an honest and inspiring story through many challenges and finding positivity through it all.”

• “Hi Brad. I was recently diagnosed with Muscular Dystrophy. I read your book and wanted to let you know that it made me feel a lot better about my diagnosis.”

Get Your Copy of Fighting Towards Victory - Order now from Canada, the USA, the UK, and more: linktr.ee/fightingtowardsvictory

Connect with My Beckers Story
Find me on Instagram, Threads, and Facebook @mybeckersstory

Surviving the Brooklin Spring Fair - Thanks to My Trusty Cane

Last night, I did something I wasn’t sure I’d be able to pull off - I survived a night out at the Brooklin Fair. It wasn’t without its challenges, but I made it through, and I have my cane to thank for that.

To be honest, I was disappointed - but not entirely surprised - by the lack of accessibility at the event. I had assumed the paved parking lot would be reserved for accessible parking. That would have made sense, right? Instead, it was being used by one of the fair’s sponsors to showcase their vehicles. The designated accessible parking was tucked far away from the festivities, a considerable distance to cover if you have mobility challenges. Meanwhile, event staff and fair reps had spots much closer. Unfortunately, it felt like accessibility was once again an afterthought.

It’s frustrating, but it’s something you start to expect when living with a disability. Still, I didn’t let it ruin my night. I had a good time, all things considered - and that’s largely because I made the choice to bring my cane instead of my mobility scooter.

Why the cane? Simple: my scooter doesn’t handle grassy terrain well. The ruts from tractors and natural dips in the ground can cause it to get stuck - or worse, tip over. I felt well enough, maybe thanks to a pre-fair nap, so I opted for the cane, knowing I’d have to constantly scan the ground to avoid a fall. Fortunately, I made it through without incident. The fencing around the grounds helped too - I could use it for support when needed.

We explored the animal exhibits, grabbed some food, and decided to find a good spot for the tractor pull. Here’s where I made another miscalculation. We picked the wrong side of the track. Across from us, the bleachers were filling up - but those folks had the benefit of partial shade. Meanwhile, we were directly under the blazing sun. It didn’t take long before I started overheating and feeling faint. I let my wife know and we made a beeline back to our car for some much-needed air conditioning.

Thankfully, while we were cooling off, we got a message from the friends we were meeting. They’d already found seats - on the shaded side. What a relief! We met up with them, and I immediately felt better. As the sun went down, the temperature dropped, and the rest of the evening was actually enjoyable.

Believe it or not, I had never seen a tractor pull before. It was loud - sorry to those who prefer EVs over roaring V8s - but kind of thrilling. Who knows - maybe one day we’ll see electric tractors in the competition. It’d definitely sound a lot different!

After about an hour and a half, it was time to make the long walk back to the car. My legs were tired, but I stretched, took it slow, and made it. The cooler air helped a lot. I was just so grateful to have brought the cane I keep stashed in our vehicle for days just like this.

In the end, despite the glaring issue with accessible parking, it was a good night. A fun event, new experiences, and a reminder of how small improvements in accessibility could make a big difference. If you’re attending next year and using a mobility scooter, make sure it’s built for off-road conditions. And if anyone from the fair is reading this: it wouldn’t take much to do better. Let’s hope accessibility moves up the priority list.

As for me, recovery mode is on today. Nights like yesterday come with a cost - my leg muscles are making it clear that rest isn’t just helpful, it’s necessary. Living with a disability means listening to your body, honoring its limits, and knowing that pushing through isn’t always the answer.

Getting to the Heart of Becker Muscular Dystrophy

Living with Becker Muscular Dystrophy often involves anticipation of the condition worsening. Many individuals experience concern about heart-related issues, which, although manageable, remain a significant concern for many. This underscores the importance of regular heart check-ups. It is essential to acknowledge that heart-related complications are a potential aspect of Becker Muscular Dystrophy, and awareness of these facts is crucial.

Research & Hope for the Future

Becker Muscular Dystrophy (BMD) can impact individuals in various ways. While some may be able to walk or use mobility aids in certain situations, others may have lost the ability to walk. Currently, a study by Edgewise Therapeutics is underway with the hope of developing a treatment to slow the progression of BMD. This significant study has the potential to lead to future treatments for other forms of Muscular Dystrophy. If they discover a method to protect our hearts, it could benefit the entire Muscular Dystrophy community.

While there is a serious aspect to living with Becker Muscular Dystrophy (BMD), we can remain hopeful that advancements in research will benefit not only future generations but also those currently living with Becker. Although there are certainly challenges associated with living with a progressive disability, it is important to focus on the potential positive outcomes from ongoing studies. Looking to the future with hope for good results from current research is essential.

Throughout my life with Becker Muscular Dystrophy, I have found a positive aspect in meeting others who are living with the condition. Our community is often very supportive, willing to help each other through both the good and bad times. There have been many occasions where I have received valuable advice from fellow individuals with BMD, which has helped me navigate difficult periods.

One challenge we encounter is dealing with family or friends who may not fully understand the issues we face, particularly when we are at a less visible stage of living with Becker Muscular Dystrophy (BMD). They may make insensitive remarks or show a lack of understanding regarding why we can no longer visit their homes due to obstacles like stairs or other barriers. Living with any disability can be frustrating, as it often involves dealing with challenges that those without disabilities do not experience. This can be quite stressful, which is concerning, especially given the potential heart-related issues associated with BMD.

This post emphasizes the importance of supporting our community and helping others understand the lives we lead. It also highlights the need for doctors and other healthcare providers to be well-informed about Becker Muscular Dystrophy (BMD). Increased awareness and knowledge will contribute to improved care and better outcomes for everyone living with BMD. Ultimately, like everyone else, we deserve the best possible care and greater understanding from those we share our lives with.

To learn more about Edgewise Therapeutics and their efforts please visit https://edgewisetx.com/ 

To learn more about life with Becker Muscular Dystrophy consider getting a copy of my book "Fighting Towards Victory" Available on Amazon by visiting https://linktr.ee/fightingtowardsvictory

Dodging the Smackdown: When Becker Muscular Dystrophy Reminds Me Who’s Boss

The other day, I was enjoying a walk, feeling great, then this evening - a fall in the parking lot outside our building. Yet another 'successful' fall with no real injuries, just what seems like a lightly sprained index finger. Oddly for me that’s a win! This was just Becker Muscular Dystrophy saying - hello, remember me? Lesson learned today be extra cautions especially on the good days!

Now, I’m well aware that a fall could end badly - and I can imagine a few people asking 'Why didn’t you use your mobility scooter?' Well, here’s the thing - it’s not that simple especially if I am alone. As getting out of my apartment with the scooter is like going through an obstacle course.

There's three manual doors between me and freedom and just to get my scooter outside I need my trusty wooden board, perfectly crafted for a smooth ride over an inconvenient lip at the front entrance. Let’s just say, the concept of accessibility around here is about as common as it was in medieval times. You get the picture, right? Like always I find ways to adapt.

Today, I’m just grateful I walked away with only a few bumps and bruises - like Becker Muscular Dystrophy decided to give me a light slap instead of a full-on smackdown!

Building on the smackdown reference, it got me thinking - what would my wrestling name be? Probably something like "Brad 'The Perseverer' Miller." It’s got a nice ring to it, right? Plus, it pairs perfectly with the title of my book. I just wish I could "Layith the smackdown" on Muscular Dystrophy!

Yes, I grew up watching The Rock (Dwayne Johnson), the man behind that iconic catchphrase. Definitely some great memories!